Related Links

Related Links


An Introduction to S.T.R.C.

Please enjoy this 12 minute video; the first part is with Abbie, then with one of our nutrtional counselors, Cindy and then an excellent massage demo with Myra.


 

St/Dystonia, Inc.


A National Support Organization.

http://www.spasmodictorticollis.org

This group no longer sells the High Back Obusforme. Best place we’ve found is Amazon.com


Torticollis Massage Guidebook & DVD by Myra

Click HERE to visit Myra’s Guidebook site

To request Myra’s free ST Massage Letter: Click HERE

Myra’s email: torticollismassage1@gmail.com


NEWNew book by Abbie Brown Collins: 1-900 Miracle http://abbiec5.wix.com/900miracle

This is a Christian book and is not about Torticollis, although it contains 2 chapters on her own struggle with ST and the genesis of the Clinic. Please read the Introduction PDF file on the webpage above before deciding whether or not to buy the book.

NEW Complete clinic cookbook revision by Abbie Brown Collins COME & DINE with new recipes and 2 free recipes here: http://abbiec5.wix.com/cookbook

 

NEWEXCELLENT new book: Diagnosis Dystonia; Navigating the Journey by Tom Seaman. This should be THE resource book for ST for many years to come!!! http://www.diagnosisdystonia.com

 


 

Alerts on withdrawal from Benzodiazepines

(Ativan, Klonopin, Valium, & Xanyx) Ambien, though not a Benzo, can have similar severe withdrawal symptoms.


Medical Research on Benzo Withdrawal

Benzo Withdrawal (.pdf)

Benzo Buddies, info and a forum

 


Shaklee for healthier living!

http://strc.myshaklee.com/us/en/n All in-house STRC clients receive their first month supply of Shaklee Vitalizer free.

At this link you will be able to order your Vitalizer (complete all natural Vitamin/Mineral program) and receive a FREE membership. This will give you a 15% discount on all Shaklee products. If you put your Vitalizer on auto-ship, you receive an additional 10% discount each month (that’s a total discount of 25%). This adds up to HUGE savings over time!!


Social Security Disability help:

A man with Torticollis named Fred Johnson is a Social Security Disability representative, partnering with the American Dystonia Society to Provide help to ST’rs seeking SS Disability help. His success rate so far, has been 100%! His phone is 1-800-536-0454
Email him at fred@ssdwin.com His website is: http://ssdwin.com/

Also, here is a government link:
http://www.ssa.gov/pgm/disability.htm


No-No medications: (VERY important!)

Click on No-No Meds link for a Pdf file Click Here

There are many meds that can cause Dystonic reactions, and we should avoid all of these!! Lipitor, Lyrica, Spironolactone and Ambilify should also be in the list. Even if a drug is not on the no-no list, look up the side effects on the internet. If you see side effects such as muscle spasms, muscle tightness, muscle crapming, muscle twitching, etc., that’s a major red flag.

Dopamine antagonists which are generally used to treat psychotic disorders and have been reported to make dystonia worse, should be used with caution. They include phenothiazine, haloperidol, tetrabenazine and pimozide. These drugs are usually avoided in the treatment of one with dystonia due to the potential to worsen dystonia. It is important that the doctor prescribing these types of drugs be familiar with dystonia.

Both all SSRIs and SNRI’s must be avoided!
Serotonin-­‐norepinephrine reuptake inhibitors (SNRIs)
• Desvenlafaxine (Pristiq), active metabolite of venlafaxine.
• Duloxetine (Cymbalta)
• Levomilnacipran (Fetzima)
• Milnacipran (Ixel, Savella)
• Venlafaxine (Effexor)
Tramadol (Tramal, Ultram) and Sibutramine (Meridia, Reductil) are also SNRIs and may be included in this class.


Free To Speak Voice Clinic

Letter written to the Dystonia Foundation by a former client I have recovered from spasmodic torticollis, and from spasmodic dysphonia. I credit a holistic approach that moved away from initially counterproductive botox shots in favor of physical therapy for the neck and speech therapy for the voice. I credit the following individuals for sponsoring clinics to help me successfully treat my condition: Abigail Brown, who has a clinic in New Mexico called the Spasmodic Torticollis Recovery Clinic, and Connie Pike, who has a Free to Speak Voice Clinic in Tampa, Florida.

http://www.freetospeakvoicetherapy.com/index.html
I advise anyone suffering from ST to see Abigail, and anyone who has SD should see Connie. Above all, experiment with variations of their physical and vocal therapy, as no one method works for everyone. Best, Ron

http://www.freetospeakvoicetherapy.com/index.html


Santa Fe Visitors Bureau

Santa Fe Convention and Visitors Bureau
201 W. Marcy St., Santa Fe, NM 87501
800-777-2489

Website: http://www.santafe.org/

For unique, personalized and very reasonable tours of Santa Fe and surrounding area, click here to book:


Dangers of household chemicals

Household Chemicals It makes NO sense for those of us with a neurological disorder to go out and buy products that contain chemicals that can cause neurological damage!

I’m including this pdf file (click here) to hopefully scare you out of your wits, so you will begin using natural products.

We strongly recommend Shaklee supplements but also all the great Shaklee household, body and bath products. Click Here For Shaklee products


  • Products

  • Kneading Fingers Massage Machine: (the ST’rs best friend!) Use in a high back chair (like a wing back or recliner) and lean against it starting at the neck and letting the machine work down to your mid-back.

 

  • High Back Obusforme: turns every chair into a high-back support for your neck and head. amazon.com has a fair price.