Related Links

Related Links


An Introduction to S.T.R.C.

Please enjoy this 12 minute video; the first part is with Abbie, then with one of our nutrtional counselors, Cindy and then an excellent massage demo with Myra.


 

 Also see this 37 second video on a massage technique not on Myra’s video: “Skull Rock”: This helps to loosen those tight neck muscles where they insert into the skull. https://youtu.be/EGXKHi4NdYo

Torticollis Massage Guidebook & DVD by Reese Myra Murphy

Click HERE to visit Myra’s Guidebook site

To request Myra’s free ST Massage Letter: Click HERE

Myra’s email: torticollismassage1@gmail.com


BOOKS

Abbie’s Books Click Here:  https://stclinic.com/abbies-books/

EXCELLENT new book by Tom Seaman: Diagnosis Dystonia; Navigating the Journey  This should be THE resource book for ST for many years to come!!! http://www.diagnosisdystonia.com


Alerts on withdrawal from Benzodiazepines

(Ativan, Klonopin, Valium, & Xanyx) Ambien, though not a Benzo, can have similar severe withdrawal symptoms.


Medical Research on Benzo Withdrawal

Benzo Withdrawal (.pdf)

Benzo Buddies, info and a forum


Shaklee for healthier living!

https://us.shaklee.com/Nutrition/c/100

At this link you will be able to order your Vitalizer (complete all natural Vitamin/Mineral program) and 15% discount on all products when you become a member. This adds up to HUGE savings over time!! A strong immune system encourages your body to repair. Here is the application for membership. Signed Shalee App


Social Security Disability help:

A man with Torticollis named Fred Johnson is a Social Security Disability representative, partnering with the American Dystonia Society to Provide help to ST’rs seeking SS Disability help. His success rate so far, has been 100%! His phone is 1-800-536-0454
Email him at fred@ssdwin.com His website is: http://ssdwin.com/

Also, here is a government link:
http://www.ssa.gov/pgm/disability.htm


No-No medications: (VERY important!)

Click on No-No Meds link for a Pdf file Click Here

There are many meds that can cause Dystonic reactions, and we should avoid all of these!! Lipitor, Lyrica, Spironolactone and Ambilify should also be in the list. Even if a drug is not on the no-no list, look up the side effects on the internet. If you see side effects such as muscle spasms, muscle tightness, muscle crapming, muscle twitching, etc., that’s a major red flag.

Dopamine antagonists which are generally used to treat psychotic disorders and have been reported to make dystonia worse, should be used with caution. They include phenothiazine, haloperidol, tetrabenazine and pimozide. These drugs are usually avoided in the treatment of one with dystonia due to the potential to worsen dystonia. It is important that the doctor prescribing these types of drugs be familiar with dystonia.

Both all SSRIs and SNRI’s must be avoided!
Serotonin-­‐norepinephrine reuptake inhibitors (SNRIs)
• Desvenlafaxine (Pristiq), active metabolite of venlafaxine.
• Duloxetine (Cymbalta)
• Levomilnacipran (Fetzima)
• Milnacipran (Ixel, Savella)
• Venlafaxine (Effexor)
Tramadol (Tramal, Ultram) and Sibutramine (Meridia, Reductil) are also SNRIs and may be included in this class.


Taos, NM Visitor’s Bureau 

Website: https://taos.org

Discover Taos and on the plan your trip link, scroll down to order a free Visitor’s Guide.


Dangers of household chemicals

Household Chemicals It makes NO sense for those of us with a neurological disorder to go out and buy products that contain chemicals that can cause neurological damage!

I’m including this pdf file (click here) to hopefully scare you out of your wits, so you will begin using natural products.

We strongly recommend Shaklee supplements but also all the great Shaklee household, body and bath products. Click Here For Shaklee products


  • Products

  • Kneading Fingers Massage Machine:  (the ST’rs best friend!) Use in a high back chair (like a wing back or recliner) and lean against it starting at the neck and letting the machine work down to your mid-back.
  • High Back Obusforme: turns every chair into a high-back support for your neck and head. Do a web search. Get the one by Homedics. Search the web.
  • Elasto-Gel Cold Neck Wrap: helpful for both pain and spasms. Amazon.com also has this.
  • AccuBall Massage Tool: I use mine daily and my neck and shoulders and love it. Search web for best price.
  • Occipivot: self-help cranial sacral device. Place on a pillow and lie on it with the bumps at the base of the skull. 20 minutes max. Here is a demo (be remember we use it on a pillow, chin slightly tucked)  https://www.youtube.com/watch?v=Jay0Z88rS1g
  • Back Buddy (or similar product) for trigger point work on shoulders and back.