Spasmodic Torticollis Recovery Clinic FREE TIPS
There is more information in these tips than I had when I recovered.
ST’rs have complex physical problems with varying degrees of involvement, so we custom the program to each individual person, according to their own situation and the way their ST manifests. For example, some clients can do almost all the exercises, some only a few; some can do the standing ones standing, others have to do those lying down to have the exercise be helpful and not be counterproductive. Re. the exercises, almost always the side to which your head turns or pulls is the “short side” (your muscles are more contracted on that side which pulls the head over and usually pulls that shoulder up.) You are actually short all the down on that side – back and even into the hip. You need to exercise to stretch both sides of the back (as ST almost always manifests also in the back) and neck with more emphasis on your short side. If you lean one direction and turn the other, you probably have a bilateral shortness and need to work both sides evenly. One of the keys is trying to stand erect, back of the neck flat, chin down, shoulders squared but as relaxed as possible, and your head and neck stacked on top of the trunk of your body, (i.e. a “military brace” position) not with the head jutting out in front, which is so typical with ST’rs. You can see how this feels if you will lie down on the floor on your back, knees up. Now try to touch the floor with the back of your neck. You won’t be able to, but try. You’ll see that will force your chin way down and you should feel a stretch in the neck and skull. Now try to imitate that position standing up or sitting – that’s the Military Brace position, and most exercises are done in that position. The chin should never be up with the head reared back. So if you are lifting a weight over your head, you can stand very straight in a military brace position (back of neck flat and chin down, shoulders squared), knees slightly bent and raise the weight over your head and down several times, maintaining the military brace. Think the exercise into the back of your head and neck – i.e. try to feel it there. You can begin with a 5 or 10 lb. bell or whatever is challenging for you. Then apply the same principal to other stretching exercises. You won’t feel much if you are on Botox, but the exercises are still being effective. The trick is to daily stretch those muscles and get them flexible and of equal length. Work in slow motion and hold the extension, breathing into it. Try not to do anything that rolls the head back, or juts the head forward like painting a ceiling or riding a bike!
Then you should be getting some daily massage – maybe from a family member. Don’t massage the SCM muscle! Sit in a chair sideways so your back is exposed, forearms on your knees, head hanging down, and have the person doing the back rub stand in back of you and use the heel of his hand (with some massage oil) or knuckles and begin at where the bra line would be for a woman and move up the muscles on either side of the spine and up into the neck, using as much pressure as is tolerable – to penetrate and stretch. Stay off the spine!! He can use his thumbs or heel of the hands as well or knuckles to work on the muscles in the back, across the shoulders and neck up into the base of the skull. The central area of irritation with ST appears to be in the muscles in the mid back, the upper shoulders and at the bony ridge at the base of the head, and you’ll find you are probably very tender there. Use the knuckles to push up the back of the neck and push up under the bony ridge at the back of the head and hold a few seconds. Sadly the Kneading Fingers machine we have always used is no long on the market. Here is an available product that is similar, much less expensive and that we now use at the clinic, which works very well and can be charged or used with a cord. TENKER Cordless Shiatsu Neck Shoulder Back Massager with Heat – Rechargeable HERE:
As you begin the exercises, it’s almost a given that things will get worse for awhile-more spasms and more discomfort – as your body fights back -unfortunately that’s predictable – just hang in there, but baby step your way into any exercise program. Be conservative, so that your body can get used to the changes gradually. You eventually adjust. It’s a process and takes time – sometimes months for the body to adapt and begin to straighten out. You may have to begin very gently. Don’t shock your body. What you are doing over time in this recovery program at S.T.R.C. is creating a new reality for your body – new muscle memory, new brain pathways, restructuring musculature and postural realignment, so that, eventually, that new reality, or new you, will begin to dominate, forcing the symptoms of S.T. into dormancy, and you can come into what we call a state of ongoing recovery. I personally have not seen a medical professional regarding my S.T. since 1984, take no meds for S.T. and walk in daily recovery via this program.
Don’t sleep on a contour pillow!!! That will make the ST immediately worse. Personally, I love the premium My Pillow (medium or color code white is best for most people) mypillow.com Sleeping on your back is best with your head slightly elevated, chin tucked a bit and thus you’re getting a nice passive stretch of the neck and back of head all night. DON’T sleep on your short side!!! It will make your ST immediately worse. It’s OK to use a heating pad on your neck, but not for more than 10 minutes or so, as it will weaken the muscles, but for short periods of time it’s fine. Heat on the back is fine and recommended. Cold packs are best for the neck. The Sleep Number or Select Comfort bed is a very good choice since you can regulate the softness/hardness at the touch of a button. https://www.sleepnumber.com/ This is the bed I use and mine is adjustable. I actually recovered using a waterbed. I have also discovered that if you are chilly at night, you tend to curl up while sleeping, so you might want to consider a heating blanket or heated mattress pad, so that you will more easily be able to sleep on your back.
It’s not advisable to use a cervical collar (unless you are using it as a holder for an iced gel pack or temporarily to be comfortable while driving, eating out, etc.), as collars will eventually weaken the neck. You can buy gel collars that you can use either hot or cold. Cold is best. The ice packs will actually do more to relieve the pain and calm down the spasms, and I recommend keeping the sore areas iced for long periods of time. The best ice pack I’ve found is the Elasto-Gel Cold Cervical Neck Wrap (try smile.amazon.com for this) – I love this product and strongly recommend it! It’s a flexible cold pack that covers the neck, top of shoulders and dips down the back. Put it in the freezer for 2 hours and then enjoy relief from both spasms and pain. I also love the Teeter Hang-Ups Inversion (gravity) Table – the basic model. Both QVC.com and HSN.com offer the Teeeter Inversion table with flex interest-free payments. This table is safe and easily allows you to hang upside down for a full body traction. Do not leave children unattended near the table! Use a bike lock on it if there are any kids in the house, even teens. You should not use this table if you have high blood pressure, glaucoma, are pregnant, or are on Artane. Other gravity tables are available for less at some sports stores, but try before you buy and have someone in the house with you when using it. You don’t have to have one of these to recover.
I also recommend long hot baths – it’s important to let your body rest and relax. You should avoid like the plague doing anything that causes your head to jut forward or to have your chin up and head rolled back. If you want to order a high-back Obusforme go to http://www.smile.amazon.com They are wonderful portable chair backs (get the high back one by Homedics!) that you can put anywhere. VERY helpful in keeping you erect. These things have to be done in stages. For rest breaks, much better to be down on the floor on your back with your head on a pillow, chin down, and be sure to program many short rest breaks into each day. That is also a good position for reading. (If you wear bifocals, put them on upside down!) Ditto for watching TV – lie on the floor, so you are not tempted to slouch or twist. Try not to cross your legs or twist your body when you sit. You can’t possibly do everything right overnight since you have ST – but this is the idea, and you can begin to work toward this. Take it one baby step at a time. We like Shaklee vitamins because they are food based, not chemically based and perfectly balanced. You can find them in your area or through the Clinic. https://us.shaklee.com/Nutrition/c/100
/ We recommend the Shaklee Vitalizer, a complete vitamin/mineral formula. Shaklee is by far the best product out there in my opinion. A low one-time membership fee gives you a 15% discount on all their products. You may call them at 1-800-742-5533 to enroll and order. Use my info for enrollment, #CL50241 as Abigail Collins (my legal name) Also, it’s very important to avoid much sugar, much alcohol (especially red wine, as it tends to be a muscle inflammatory), much caffeine and white flour products, junk food and preservatives, and NO sugar substitutes!!! I use granulated Xylitol available at health food stores in bulk, and that is safe for an ST’r. It comes from the bark of trees and vegetable fiber; it looks and tastes just like sugar, though is a bit milder. Use it as you would sugar, including for baking. Xylitol is actually good for you, as it fights osteoporosis by building bone density, can prevent ear infections in children, destroys plaque on the teeth and helps prevent tooth decay. Search online for the best price. This product is generally safe for diabetics. Splenda contains bleach and has potential harmful side effects. Don’t use aspartame (it’s a neurological toxin!) Try to keep your diet as healthy as you can with plenty of raw fruits and veggies and lots of water. As a chiropractic neurologist once noted, if you smoke you cannot recover – period.
Regarding the exercise, about all I could do when I began my own program was to hold a 10 lb. dumb bell and reach over as if to touch my toes and just hang with the head loose and released. And then slowly stand into an erect position, chin tucked, and hang again. I’d do that for awhile and then lie down. It was over a year before I could stand up straight, as my body was so spastic. Avoid doing things that really increases the pull WHILE you are doing them. Getting into recovery takes time, commitment and dedication as you are totally reprogramming the body. The daily massage work is essential, and be positive. It’s also important to avoid toxins of all kinds. Stay positive! If you are saying things like “Oh, I know I’ll never improve” – that easily can become a self-fulfilling prophecy. Then pray! I hope these tips will help. Let me know how you’re getting along. We offer the entire clinic program in 2 formats: our In-House Program, and the Long-Distance course. Call or email us for further information, and let us help you into recovery. (575)737-1144 Email: firstname.lastname@example.org God bless you, Abbie Brown, Director S.T.R.C.